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Hyperemesis Gravidarum Before During And The Aftermath The Untold Side Of Pregnancy You Haven't Seen…..

The dark side of pregnancy you haven't seen…..

Month

March 2017

How Do I Decide to Get Pregnant Again After Having Hyperemesis Gravidarum ? 

    Here is my bucket full of my IV medication . I could fill 100 of these . This is the life of a HG mom.
– Starr Andrews Strong HG Activist

How do I decide to get pregnant again after having Hyperemesis Gravidarum ? 

I have been a hardcore volunteer for the HER Hyperemesis Education Research Foundation for years.

The HER Foundation has such good information on their website and many moms do not even know are there . The information I have gathered myself over the years , is a collaboration of tips from moms I have supported , in my Facebook group HG before during and the aftermath. Many have shared with me that may just be super helpful if you are wanting to go down this road again. If you and your husband have baby fever , it is super important to talk and brainstorm . You need to plan the worst hope for the best . I get asked daily , on Facebook or via email from my website . I love all the Inspirational messages from moms all over the world that follow me , thank you it keeps me going .

If you have any input please comment so I can add it to my website, blog and my HG book .

The burning question how do I do this again ? Am I crazy or could I really have another baby ?

1. How do I know if I will have HG next time?
If you have had severe HG more than once, you have a very high probability of having HG again. Recent research by the HER Foundation finds over half of women (about 2/3rds) will have HG in every pregnancy. Your chances are greater if you have a relative with a history of HG, especially a sister. Health professionals often underestimate the recurrence rate of HG.

2. Are you willing and able to endure what you did in your previous pregnancy or worse ?

Don’t assume your next pregnancy will be different. Subsequent pregnancies are often similar though sometimes they vary – either better or worse. For some women, each pregnancy gets more severe. Hope for the best, but be prepared for the worst.  Having a support system in place is important I run a support group in Facebook groups called Hyperemesis Gravidarum before during and the aftermath
Click Here To Request In . Please answer all questions :

FYI: Myself and my team screen every mother’s request so memberships can pend for a long time. If you need in sooner message me or my organization public page . Hyperemesis Gravidarum before during and the aftermath.

We Focus on all three aspects of hyperemesis. The before ,during and the aftermath. Find my group or reach out if you need help to plan a HG care plan or a TTC plan . If your already pregnant and need HG crisis support your not alone. Myself and team will help you ! You can always text my Crisis line .

3. Did you try all of the medication options available including Zofran and steroids?

If yes, and they did not work, know that there are few other options available currently and you may be limited to those treatment options. For some women, starting treatment earlier in pregnancy – at the onset of HG rather than after symptoms are severe, makes surviving HG possible. Also, for some, trying medications via an IV or special pump ( A PCA ) that offers continuous dosing, may be very beneficial. For a small but significant number of women, treatments are not tolerated or have no beneficial effect in any combination. These women will likely find future pregnancies to be just as resistant to treatment. Other options besides pregnancy are likely better choices.

HGBDATA we offer support and help you put a care plan action in place and have support sisters for one on one support and HG crisis support. I also have a team of women that help with HG Crisis support and ongoing support. Each moms needs are different. To get set up for this is not hard just a few forms and guidelines in place for us to help you.

4. Is your doctor or midwife willing to set up a plan for your treatment and offer all options? Will they follow a care plan you make up by speaking to one of us at my organization? Home health care and IV hydration at home ?

Normally I am the one that does this but my Director Yeni does if I’m not available, she can start your treatment plan . At HGBDATA our HG Crisis volunteers are here to help . If you feel you need more then one on one support , you have group support ! My groups are very tight knit and we keep it small and screen each member that wants in . For the safety of the group and my moms who are in my group . You can reach out to my self or my Director Yeni and we will set in place a team for you.

If your next pregnancy is similar or worse, you may face a great deal of suffering. Having at least one if not two health professionals, and a perinatologist, prepared to care for you is important to ensure you get the care you need. One may be unavailable during the time you most need medical care or may be uncomfortable treating severe HG. A Hyperemesis Gravidarum care plan and speaking with them going over in great detail what the plan is and make sure it’s in your medical record ! Print out the care plan bring a copy. I do write the care plans myself and they can range from 2-22 pages . I am very sick in the aftermath, however I do everything for the moms who come to me . Two nicknames I am called in the HG community is Mama Bear 🐻 and the HG Fairy 🧚‍♂️ Godmother. I will help you through this !

5. Are you willing or unwilling to take medication or do you have serious concerns over safety?

Considering most pregnancies are similar if not worse, medication is often necessary to avoid therapeutic termination or miscarriage. Review the medication page on the HER Foundation site to be informed of the risks to you and your baby. All medications carry risk, but the risks are often outweighed by the benefits they offer in managing the symptoms of HG.

6. Would you be willing to have a special IV (PICC) inserted for nutrition if needed?

Sometimes women require IV nutrition (TPN) which means you will need help at home daily, home health care nurses, and careful monitoring by health care staff to avoid infection and other complications. It is also expensive but can be life-saving. If you are unwilling due to cost, discomfort, or concerns over safety, please read up on it to be informed. There is always the possibility you will be faced with severe HG and even the choice between losing your baby or IV nutrition. IV fluids and medicine at home instead of the hospital! You have options! They may not tell you your options but you have many .

7. Did you require numerous medications and invasive treatments like a PICC line in your previous pregnancy?

Each medication carries some potential for risk to your baby, and introduces the possibility of side-effects or medication interactions. PICC lines (or other central lines) are risky and not to be taken lightly. I have a blog on it here For those very ill, they can be life-saving and necessary, however, avoiding them is ideal.

but HG is life threatening so the benefit outweigh the risk . However not all PICC LINES and veins are created equal. Check out my blog on SECURACATH you got questions on IV treatment please reach out to me. If you feel that no matter what, you will require extensive medical care, remember these present risks that you cannot always control or prevent.

8. Did you terminate your previous pregnancy due to the severity of HG?

Know that the severity often repeats in future pregnancies. Proactive, aggressive care that is planned in advance is critical to surviving more severe cases of HG. Sometimes each pregnancy will be worse than the previous even with good care. This could be due to the brain becoming more sensitive to the vomiting stimulus, thus making the brain less able to control the vomiting. If you would not terminate again and enter unto pregnancy without a plan, you are taking a significant risk. Get tested for the MTHER gene mutation.

IMPORTANT IF YOU TERMINATED

You should avoid intercourse, at any rate, during the first two weeks after a termination to decrease your chance of a post-abortion infection and a pregnancy if you are not yet on birth control. Avoid getting pregnant during the first month after an abortion to give your uterine lining time to heal to accept another pregnancy. Your uterine lining begins to heal right after an uncomplicated abortion. In case you really want to conceive after an abortion, doctors recommend you use contraception and wait until after you have at least one normal period before trying to conceive again.

After terminating a pregnancy, it is possible to get pregnant as soon as you ovulate if you have unprotected sex. This can happen within two weeks, even if you are still bleeding. Based on a 2014 review in the International Journal of Obstetrics and Gynecology, 83 percent of women ovulate in the first cycle following an abortion, and this can occur as soon as eight days after the procedure. The statistics are similar for first trimester surgical abortions and medical abortions. You are at higher risk for pregnancy complications and miscarriage if you don’t at least wait 1-2 months to get pregnant ! Having Hyperemesis Gravidarum you need to prepare your body before jumping into rushing to get pregnant ! This applies to having a miscarriage as well.

9. Do you have good social support and adequate help at home?

This is something that is very important to all pregnancies, but more so for surviving HG, especially if you have children to care for already or get very sick. Women with very high stress levels have higher rates of postpartum depression, and increase the risk of emotional and behavioral disorders in their child.  We have a support group on Facebook and there quite a few other groups we can send you their way if you like so you have more then one support group each offer great support. Most of us in the HG community all know each other and each of our groups are different, but in a good way . If you like a list let me know .

10. Do you have children at home that will require your care? 

It will be difficult if not impossible to maintain a normal routine for your children.  You may need to depend on family, friends or day care in order to care for your child(ren) during the worst of HG.  This can vary from a few weeks to the entire pregnancy. Contrary to popular belief, HG does not end at 13 weeks. It often eases by mid-pregnancy, ( FOR SOME but NOT ALL symptoms may last until delivery. The longer HG lasts, the greater your fatigue and debility, and the longer your recovery.

11. Do twins or multiples run in your family, or do you require fertility treatments that increase the risk of multiples?

Multiple pregnancies have a higher risk of HG due to the higher level of hormones in their body.

12. Are you back to normal health?

Try to be in the best physical and mental health possible before pregnancy. Some women lose a lot of weight and plan to be about 10 pounds over their normal (healthy for their height) weight at conception, so they have some weight to lose and additional stores of vitamins. Before TTC a TTC plan is important to prepare your body for Hyperemesis Gravidarum contact us and we can help.

13. Do you have money saved up to pay for assistance at home, co-pays and out of pocket expenses, including childcare and non-covered treatments?

Surviving HG can be expensive if your insurance coverage is limited, you have severe symptoms, become debilitated, experience complications during or after pregnancy, or you lose your income. You can decrease the stress of HG by having extra money available for unexpected expenses. This will also prevent you from having to make choices in your care based on your finances and not your needs.

14. Do you have insurance coverage for medications like Zofran and treatments like home IV and nutritional (TPN) therapy?

One month of medications like Zofran can cost approximately $3000 (USD), and TPN at home costs upwards of $500 per day (USD). Without insurance, needed treatments may be too costly, leaving you to suffer unnecessarily. Ensure you have a plan that will cover all possible treatment options and make sure you have waited the required time period for eligibility. Also check to see if HG would be excluded for some reason. It is also very helpful to know the process for seeing a specialist (e.g. if your insurance requires you to get a referral). Be sure that your preferred doctors and hospital are covered by your insurance, or that you have the extra money required to see doctors outside of your network.

15. Do you have to work or can you take a leave of absence from employment?

Review your finances closely and determine if you could live without all or part of your income, and for how long. There is no guarantee that you will be able to take a leave from work or be able to return quickly. Alternatively, explore medical disability options and ask your health professional what criteria is used to determine when you would be placed on disability. Also, be familiar with your employer’s policies on taking a leave of absence or your vacation time. If your HG symptoms are not severe, consider part-time or flex hours. Finally, know that physical work is not recommended during pregnancy and practically impossible with HG. If this is part of your job, other options will need consideration. Recovering from HG and a complicated pregnancy can take months, not just weeks and planning ahead for this is crucial, especially if you have HG beyond mid-pregnancy.

16. Did you have complications other than HG like gestational diabetes, thyroid disease, clotting disorders, or high blood pressure (i.e. preeclampsia, hypertension)?

These complications may return in future pregnancies and present significant risks to the baby if not controlled. The risk of harm to you and baby is high if you do not respond to the treatments offered or cannot tolerate the treatments. The more complicated the pregnancy, the more difficult it is to manage, and the higher the probability you will have an early delivery or other adverse event.

17. Has your health care professional suggested that another pregnancy could be dangerous or pose significant risk to your health now or in the future?

Some women have long-term health issues due to HG including heart or brain damage, gall bladder disease, extensive damage to teeth, hernias, stomach ulcers, bone loss, depression, and joint damage (esp. jaw – TMJ). Pregnancy and delivery alone present many risks that can be life-threatening. These risks may be too great for you, especially if you have children at home that depend on you. This is something you will need to discuss in depth with your family and medical professionals before deciding. There are other options such as adoption and surrogacy, which are chosen by women with HG who desire to continue their family despite HG. It is very important to understand the risks to you and your child so you can make an informed decision.

18. Is your partner or spouse willing to support you through another pregnancy?

You will need as much support as possible to endure HG. Without a supportive person around you, it will be difficult to ensure you get the care you need. When you are ill, it’s difficult to advocate for yourself. Since many women with HG go on to experience postpartum depression and anxiety due to trauma, it is critical that you have support beyond pregnancy. Physical recovery can take several months, and emotional recovery much longer. If your partner or spouse is not supportive of another pregnancy or had great difficulty coping with previous pregnancies, ensure you have alternate support systems in place and think carefully about your decision. If you become too ill to care for yourself, you will need someone close by to advocate and care for you. Remember there are many Facebook groups for Hyperemesis Gravidarum online I run one !

19. Do you have flashbacks, severe anxiety or nightmares about HG?

HG is often very traumatic. The thought of enduring it again often creates a great deal of anxiety for women. If you are still suffering from the trauma of HG, professional help is needed to help you prepare for another pregnancy. Some areas have groups that specialize in women’s health during and after pregnancy. Your OB may be able to offer referrals. It is not uncommon for women to feel anxious when trying to conceive, knowing that HG lies ahead. Being prepared and informed about managing HG will ease the anxiety.
Going through Hyperemesis Gravidarum is forever changing and can leave a everlasting impach on you mentally emotionally and physically.

Your not alone ,

Starr Andrews Strong HG Activist

HG Fairy 🧚‍♂️ Godmother

Starr Andrews Strong HG Activist

HG Before During And The Aftermath

FOUNDER OF HGBDATA

HER VOLUNTEER

#HGMovement

information courtesy of The Her Foundation.

Source : HER Foundation

Starr What is CVS Cyclic Vomiting Syndrome ? Is it related to Hyperemesis Gravidarum (HG)

Today’s Question of The Day is What is CVS ? A.K.A Cyclical ( Cyclic ) Vomiting Syndrome.

Disclaimer:
Please excuse any typos , I had a stroke and was in a coma. I have had to come in and re edit as my blogs were messed up . Now on to my blog 😆

I Get Ask This Question Daily . Starr is HG actually CVS ? Are they the same thing ? Your wealth of knowledge is priceless .

Starr I had Hyperemesis Gravidarum (HG) while pregnant . I read that you know about the two and how they are the same like a sisterhood disease. I’m still sick but I heard you get CVS too in the aftermath? When I was breastfeeding I would feel so sick .

Every time my period comes I get hit with HG symptoms. When I was breastfeeding I was always sick around the same time each night , It is just like HG. I’m overwhelmed please help explain what CVS is and how you say the word Cyclic does this mean cycle like a period or bike ? Sorry for the stupid questions but your the only one I know of that can answer these questions to educate and not belittle me for not knowing 😉. My family thinks I am going to die …..

~ Anonymously Crazy


What a great question! I get asked this daily .

I have had CVS since I was younger it was triggered from my periods it was so bad, I would end up every month in the hospital due to dehydration it was bad and no one understood me .

I didn’t know for a very long time that it was CVS. Intractable nausea and vomiting they call it in medical terms . I had my gallbladder removed when I was 22 because they were not sure that was the reasoning why I had intractable nausea and vomiting , sadly it just made everything worse .

WHAT IS CVS?

CVS stands for Cyclic Vomiting Syndrome . Most that don’t suffer or don’t know how to pronounce it. Many suffers will call it cycle but that what Cyclic means . To pronounce it the best way I remember that stuck in my head of a real good friend of mine and CVS sister Coleen Rice that wrote a book on CVS . I love her , it was the first CVS book I read , before she started CVS Speaks. CVS Speaks is a social media organization on Facebook.

I was so happy when I found her book it kept me sane . Rare but not alone you can get on Amazon.

I enjoyed her book , it’s a good book to know your not alone . It has been many years since I read it however a part in her book has happened to myself trying to explain to a nurse how to say it. If your trying to teach someone how to say the word Cyclic ( Sike Lic ) you would think 🤔 Is this how you say it ? NOPE !!The C is silent! Like physh lick . Some people will say SICK LICK , I had many nurses do this to me saying your sick and you licked what that led to vomiting . 🤦‍♀️

Insert eye roll 🙄 here . Tomato tomatoe however try to say it correctly . Especially if you are not the one suffering.

I didn’t for a longtime lol 😆.

Otherwise you may get punched in the face .

Cyclic Vomiting Syndrome, also referred to as CVS in short , or long is an severe nausea and vomiting disorder with sudden, repeated attacks—also called episodes—of severe debilitating nausea, vomiting, and physical exhaustion that occur with no apparent cause. Many CVSer fall into a conscious coma where they can not speak just lay there still and only enough strength to vomit. These episodes can last from a few hours to several days or months at a time or longer, Yes , months .

Episodes can be so severe that a person has to stay in bed for days, unable to go to school or work or care for their children let alone themselves . A person with CVS and this can be women, men ,boys or girls including children have CVS, CVS doesn’t discriminate .

CVS can get bad , real bad and if you or someone’s out know and love have a attack that won’t stop , You should seek treatment at an ER or a hospital during episodes if they can not abort it in what I call the

Golden Window of time”

The golden window is a short period that the suffers has to get medicine to abort the attack ASAP. Everyone is different in what works to abort their attacks may not help you as we are all different. I have been able to

After having HG during my pregnancy my abortive medications changed. I had to have Zofran shots by I.M. Injection which is a muscle injection of the medication to try to prevent me having to go in for IV hydration and IV medication to stop the nausea and vomiting . My doctor was a bully at the time and let me suffer and wouldn’t let me get fluids at home or the clinic .

Others have only pills like Zofran , Ativan, Imtrex pills or injections can sometimes abort an attack . For many of us we don’t want to go to the ER because we are patient profiled.

Why are we profiled as drug seekers

We are not taken seriously about our symptoms. For myself and countless others with CVS get extreme stomach pain in the upper part of our stomach that can leave the sufferer curl into a ball on the floor . Because the need pain medication at times and very sadly someone with CVS are often labeled “drugs user ” and a “frequent flyer “. Yes the ER will flag you , I have seen it , experience it , and watched this young mom be told as she lied in room 11 crying loudly and puking, after having her baby .

I walked in and said sweetie I believe you here is my business card for my organization, I’m here reach out to me . She thought I was an angel because she asked the nurse and the nurse said no one came in your room . You may be put on a 51/50 if you keep talking like that . I put a few cards in her bag so when she was coherent enough to find it . You may not here them say it to your face , however you are in their eyes.

This was when in the my daughter was on a 51/50 for 13 days, she was 5 years old.

I was shocked the things I heard and what I saw with my own eyes and heard I will never forget. I have been asked to add a part on 51/50 and what happened. I will add a small section here , until I can blog it and put it up on my YouTube.

“A 51/50 is a Involuntary psychiatric hold the person has to be a Danger to themself:

The person must be an immediate threat to themselves, usually by being suicidal. Someone who is severely depressed and wishes to die would fall under this category (though they generally have to have expressed a plan to commit suicide and not just a wish to die) you can be suicidal and not plan to die .

 2: Danger to others: The person must be an immediate threat to someone else’s safety.

3: I have seen doctors and nurses treat others like crap and seen good care too.

My daughter was held for 13 days in a little ER room . Room 8 will haunt me for life , it was a nightmare for my husband and I.

The way we were treated and our daughter. We were locked in a prison in room 8 , (another story another time I did Vlog and will link it here , when I edit it )

You will hear people talking about how bad they are treated in an ER with CVS , my daughter was resting and I was walking to the bathroom and this nurse is trying to chase the doctor down to ask for medication consent and I actually heard and saw with my own eyes the doctor say “she fucking faking the vomiting and pain” she was just here a few days ago . “I will not give her pain medication, discharge her NOW!” She a junkie Anna so the answers NO, get her out of here . My heart sank because I been there I had to go to her room and say “I believe you” I hurry up and peed and made sure that doctor wasn’t around , I didn’t have the strength to battle because I was in my golden window of time for myself. This push us to the brink of insanity. 

I wanted to see if this person had CVS or Gastroparesis. Pain is part of what makes CVS unbearable because on top of the nausea it’s so bad you can’t eat or drink, and want to die. It doesn’t mean you will act on it , CVS mind fucks you hard.

Some with CVS experiences symptom-free periods lasting a few days , weeks to several months depends on the CVS sufferer . To people who have the disorder, as well as their family members and friends, cyclic vomiting syndrome can be disruptive and frightening.

Intensity of symptoms will vary as a person cycles through four distinct phases of an episode:

Below are the phases they may vary from person to person but usually go in this order. HOWEVER , NOT ALL CVSers ARE TEXTBOOK. I SUFFERER HAVE CYCLES THEY CAN BE IN A CONSENT ONGOING CYCLE THAT WONT END! Any doctor tells you otherwise they don’t know what the hell they are talking about . Chronic nausea that is debilitating and consumes you .

For the sufferer , depending when and how your body triggers CVS your symptoms can vary and change over time :

This is a real problem , CVS doesn’t have a one size fit all diagnosis. if you have CVS and know it but because you really haven’t felt well the doctor will say it’s not CVS and making the suffer feel lost crazy and no valuation. Not all , but many CVSer that have CVS do have Gastroparesis that can makes it more likely of being

” Stuck in a cycle “

I personally like to say attack or episode I don’t like saying cycle even though that what it is. I have some CVS brothers that will not say cycle because they been look at as crazy at the hospital and made fun of being on there man period but it’s not a laughing matter.
If you had semi text book CVS that come and go they usuallly go like this but vary……

Prodrome Phase . <<<<<<<<<<<<<<
The first phase, the person feels that an episode of nausea and vomiting is about to start. Often marked by intense sweating and nausea—with or without abdominal pain—this phase can last from a few minutes to several hours or longer. The person may appear unusually pale.

It can go from just nausea then hit hard into the vomiting in a blink of a eye!

Vomiting Phase <<<<<<<<<<<<<<
Intense nausea, vomiting, and retching and pain. Periods of vomiting and retching can last 20 to 30 minutes at a time or longer. For myself when it bad it’s just non stop and I can not speak or move and I lay on my side with my face in my bucket! The person may be subdued and responsive, immobile and unresponsive, or writhing and moaning with intense abdominal pain. An episode can last from hours to days.

Recovery Phase <<<<<<<<<<<<<<
When the vomiting and retching stop and the nausea subsides. Improvement of symptoms during the recovery phase can vary. Healthy color, appetite, and energy return gradually or right away.
When no symptoms are present . CVS is a disorder that can affect a person for months, years, or decades or forever. Each episode of cyclic vomiting syndrome is usually similar to previous ones, meaning that episodes tend to start at the same time of day, last the same length of time, and occur with the same symptoms and level of intensity however this can change . Sometimes a CVS sufferer can get stuck in a cycle that is just daily with only short breaks then the nausea and vomiting come back. I hate the smell of food.
If I smell food it will make me deadly sick just from the smell . I have a very high level of being able to smell anything , I hate it ! CVS before HG was different for me ! Once I was well I could eat and drink and smell food and it was okay . Sadly this has changed as I use to be able to drink so much water in one day and now I hardly can or I vomit it all back up ! I do IV hydration at home and meds in my picc line so I don’t have to be away from my little one . Being on home health care been a saving grace .
A CVSer they can be sick daily as in ongoing and doctors will “claim” this can not be CVS if you have no break , this is false do not be fooled by uneducated doctors and nurses . Most cvs suffers have Gastroparesis on top of CVS so it mask the two illnesses into one and as why many are left sick and doctors throw their hands up saying “I don’t know what’s wrong with you” . This makes it even more depressing for the sufferer .

A suffer easily can be labeled a frequent flyer at a ER because once we get sick it can last a long time. For many of us dehydration and malnutrition can be deadly ! Within the last two years in the CVS community we have lost a minimum of 15 CVS brothers and sisters due to CVS that led to serious illness and organ failure. CVS is no laughing matter ! How many more have to die before CVS is taken seriously!
it’s not like CVS will kill you”

these doctors need to learn that CVS can kill you.
can happen by CVS are as followed .

Complications
of CVS you must replace fluids that were lost because of vomiting and diarrhea. When dehydrated, the body lacks enough fluid and electrolytes—minerals in salts, including sodium, potassium, and chloride—to function properly. Severe dehydration may require intravenous (IV) fluids and
rritation of the esophagus—can result from the stomach acid that exits through the esophagus during Vomiting. Vomiting blood can cause a tear in the lower end of the esophagus—is caused by severe vomiting. A person with bloody vomit and stool should see a health care provider right away. I have in my medical records Mallory Weiss Syndrome because it happens often , during pregnancy with Hyperemesis Gravidarum it was worse .

Tooth decay or corroding tooth enamel is damage caused by stomach acid. Once you lose the enamel your teeth are not savable. I had all my teeth rot due to Chronic CVS after having a very high risk pregnancy known as Hyperemesis Gravidarum . HG and CVS mimic each other with HG two lives are at stake in less your pregnant with more then one baby . Many moms in the aftermath of HG get CVS.
Anyone anytime and is not rare by any means . If you are unable to get treatment or delaying treatment can cause irreversible damage to your organs and this can kill a person with CVS. As dehydration is hand and hand with CVS. Septic shock is a serious medical condition that occurs when sepsis, which is organ injury or damage in response to infection, leads to dangerously low blood pressure and abnormalities in cellular metabolism. … It can cause multiple organ dysfunction syndrome (formerly known as multiple organ failure) and death. CVS causes extreme nausea and vomiting that can lead to dehydration and malnutrition. However many CVS suffer in silence because we are label drug seekers and some CVS treatment includes pain medications so the medical community points fingers and saids ( nope just wants drugs )

All we want is to be out of pain and to help the Sickness , nausea and vomiting to stop. many with CVS that get Hyperemesis Gravidarum it’s Severe and needs to be treated aggressively many like my CVS brother Dave pictured in this blog , dehydration can lead to serious complications, such as coma and death, particularly if untreated. … ( Dave overcame the odds and is still here praise god but he still sick and fighting the battle every day and refuses to let CVS win.

Anyone with CVS needs to have valuation and good medical treatment.
Dave is a inspiration to me . I am proud of him speaking up about it and being a man it’s not easy . I have another CVS brother Stephen who is awesome too .

Here is his YouTube video

CVS Truth from a mans point of view . It always makes me cry.

Men get CVS too .

Stephan CVS Truth

As men with CVS most of them suffer in silence. More men need to speak out to show it’s just not in “our heads .”

Our body needs many things to stay alive . However the lack of aggressive treatment for Cyclic Vomiting syndrome, organs including the kidneys, liver, and brain are often damaged due to severe dehydration. Confusion and coma are often signs of brain damage from dehydration. You may here this is very rare but sadly it’s not.
Get checked to see if you have Gastroparesis because having this on top of CVS is debilitating.

Other common medical conditions that usually go with these are

1: Mast Cell Activation Disorder

2: Dysautonomia

3: Fibromyalgia

4: TMJ

5: Migraines

It’s possible to have periods of wellness, but it’s hard on many CVSer. So many things trigger CVS and it’s very hard to pinpoint ones triggers at times even someone who has had CVS for years.

What is the CVS and the Hyperemesis Gravidarum connection?

It’s all in our DNA . CVS and Hyperemesis Gravidarum is connected by a DNA mutation-called the RYR2Factor much more research is needed as to why my husband and I are volunteer leaders for the HER Foundation.

In 2016 this was groundbreaking research with UCLA .

The RYR2 gene, encoding a stress-induced calcium channel present in many neurons, was the only gene demonstrating a statistically significant difference in the proportion of conserved sequence variants among the groups

Abstract facts

Hyperemesis Gravidarum (HG), severe nausea/vomiting in pregnancy (NVP), can cause poor maternal/fetal outcomes. Genetic predisposition suggests the genetic component is essential in discovering an etiology. We performed whole-exome sequencing of 5 families followed by analysis of variants in 584 cases/431 controls. Variants in RYR2segregated with disease in 2 families. The novel variant L3277R was not found in any case/control. The rare variant, G1886S was more common in cases (p = 0.046) and extreme cases (p = 0.023). Replication of G1886S using Norwegian/Australian data was supportive. Common variants rs790899 and rs1891246 were significantly associated with HG and weight loss. Copy-number analysis revealed a deletion in a patient. RYR2 encodes an intracellular calcium release channel involved in vomiting, cyclic-vomiting syndrome, and is a thyroid hormone target gene. Additionally, RYR2 is a downstream drug target of Inderal, used to treat HG and CVS. Thus, herein we provide genetic evidence for a pathway and therapy for HG. You can read the full abstract HERE

CVS Doesn’t Discriminate it mimics Hyperemesis Gravidarum so if your in the aftermath of your pregnancy and suffered from HG you could have CVS. If your a CVSer and get pregnant and become very ill frequently you could have Hyperemesis Gravidarum . If you have HG you can have a child born with CVS . CVS and Hyperemesis Gravidarum are related by our DNA more research needs to be done on the RYR2 FACTOR to know does this Gene mutation can be why some women get HG and CVS.

If you need help to explain what CVS is and if you have any questions at all please comment or reach out. The picture below is someone I know in my CVS groups and survived however he battles CVS as many of us do.

This photo speaks volumes and is a wake up call.

Medication can’t kill CVS nothing will there are vitamins that you can take to help make CVS a bit better . My problem is I can’t take the Mitochondrial cocktail I try and always get nauseated.
CVS on a daily basis is a huge struggle. keep fighting .

CVS is a real thing , don’t discredit someone suffering if they have CVS or have symptoms of CVS and or HG and are undiagnosed. Many doctors sadly are not educated on

Cyclic vomiting Syndrome,as they are uneducated on Hyperemesis Gravidarum . It’s about raising awareness , sharing this post and getting the word out that #CVSIsARealThing. CVS doesn’t Discriminate men get CVS too , I know quite a few men who do and it’s so hard on them too.

This picture below is of a CVS brother Dave.

Please know you are not alone , would you want to see your loved one in the hospital in a coma like this photo ?

Because this is the CVS Truth

THIS IS our #CVSReality

HG Fairy 🧚‍♂️ Godmother

Starr Andrews Strong 💕 Founder of Hyperemesis Gravidarum Before During And The Aftermath -HGBDATA

CVS Truth is a division of HG Before During And The Aftermath

http://www.hg-before-during-and-the-aftermath.com

#CVSTruth #AreYouCVSAware CVS Is A Real #HGAndCVS

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